Moebius Syndrome Awareness Day 2019 

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Hosted by the Many Faces of Moebius Syndrome  & B2B Solutions

MSAD 2019 Press Release

The Many Faces of Moebius Syndrome, the Moebius Syndrome Foundation, the Moebius Syndrome Research Trust, the Moebius Syndrome Foundation South Africa, Moebius France, ASBL Syndrome Moebius Belgium, and Kara Smiles Fund, along with many other rare disease organizations around the globe are proud to announce the 9th annual Moebius Syndrome Awareness Day which will be held worldwide on January 24th, 2019.  

Moebius Syndrome, named after neurologist Dr. Paul Mobius, is a rare congenital neurological disorder which is primarily characterized by facial paralysis, including the inability to move their eyes from side to side, or form even the most basic facial expressions, something many people take for granted. 

Medical conditions such as limb and chest wall abnormalities, dysphagia (swallowing issues), respiratory problems, sensory dysfunctions, sleep disorders, are often diagnosed in those with Moebius Syndrome.    

Moebius Syndrome Awareness Day is an international event, drawing participation from individuals around the world, including not only those with Moebius, but also spouses, significant others, parents, children, grandparents, aunts and uncles, friends, and associates of those with Moebius.    

Moebius Syndrome Awareness Day has been successful in the past with news stories in various formats including print and television and has seen a dramatic increase in social media content.   Please join the Global Moebius Syndrome community and take part in one of the many events taking place or create an event of your own. We hope you will proudly wear purple and post your photos on social media using the hashtag #MSAD2019. We encourage you to visit our Moebius Syndrome Awareness Day website at www.MSAD2019.com to do a little research and educate yourself and others about Moebius Syndrome. We appreciate your support and look forward to having a tremendously successful Moebius Syndrome Awareness day.

Media Contact:  Derek White, B2B Solutions, (360) 623-3323, derek@b2bsolutions.biz


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