This is a story about a mother with a son born with Moebius Syndrome among other medical issues. Throughout this book, she takes you through the first 9 years of his life. Experiencing many emotions as you read, each page will leave you wanting more. So take a journey through the eyes of this mother as she tells you about the boy who smiles with his heart. Click here for more details.
The Moebius syndrome community is spread far and wide. Our homes are in villages, towns, cities, and countries all around the world. We speak different languages. Our skin tones are different colors. We have different religious and political views. Yet we all share a common bond. Moebius syndrome. 'We are all in this together!"
Kevin Lockwood a Moebius Dad from California designed the official MSAD logo to represent the entire Moebius syndrome community. Feel free to share it with everyone.
2017 MSAD Theme!
MSAD 2017 on Facebook
How Do You Express Yourself? OSU #MoebiusAwareness Project! There are so many unique ways to express your true self to others, and individuals with Moebius Syndrome find ways beyond the face to do so. Research in OSU’s Disability and Social Interaction Lab shows that education about Moebius syndrome and other types of facial paralysis creates more positive impressions.
Help us raise awareness: take a photo of yourself with a sign answering the question, “how you express yourself?” Use our template, or write
I Express Myself With...
Moebius Syndrome Books
International Wear Purple for Moebius Syndrome Awareness Day
Facing it Together - A workbook and DVD to provide support, insight and effective strategies to deal with issues that parents face during the first few years of a child’s life. Facing it Together is free for Canadian parents of children under the age of 5 with a facial difference, or available for purchase. For information on the cost and to order a copy, contact AboutFace in Canada at www.aboutface.ca.
Moebius Syndrome - The 18-page booklet on Moebius syndrome was published by AboutFace and the Cleft Palate Foundation. For information on the cost and to order a copy, contact AboutFace in Canada at www.aboutface.ca.
A Guide to understanding Moebius syndrome - This booklet is a publication of the Children’s Craniofacial Association. The PDF may be downloaded from the CCA web site. The booklet is also available in Spanish.
Moebius Syndrome Foundation Brochure - To request a copy, email firstname.lastname@example.org. Click here to download a copy.
your own. Post it on the Moebius Syndrome Foundation Facebook page. Challenge two of your friends to do the same by tagging them. Read more about OSU’s awareness project: http://liberalarts.oregonstate.edu/sps/dsil/moebius-syndrome-awareness
Moebius Syndrome Awareness Day 2017
Smile For Me is a book written by Linda Lawrance from Australia to teach kids about Moebius Syndrome. This is an awesome book that we believe is a must have for any adult who wants to help their children understand what Moebius Syndrome is. Click here to view or download the book in pdf format.
Brochures & Flyers
The official theme for MSAD 2017 is EDUCATION. Jessica Maher a Moebius teen from Tampa, Florida came up with this excellent idea and we ran with it. In short we want to educate the world about Moebius syndrome. One way we can do this is by going into our schools and places of work to teach our peers about Moebius syndrome. One simple idea which people have been doing for years is just wearing purple and telling everyone why they are wearing it. If you have a great idea as to how we can educate the public about Moebius syndrome please share it with us by sending an email to Rebecca Maher at email@example.com.