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Moebius Syndrome Awareness Day 2019 

If you would like to nominate someone to be a Moebius Syndrome Holiday Hero please send us their photo and a summary about them to


Hi! Am Allie or Alex, I’m 33 today any I’m a mom for four beautiful babies! Right now they are my full time job, but in my spare time I’m training with a famous reborn doll artist to craft and hone my reborn painting skills.
To me moebius has been both a curse and a blessing, and honestly I wouldn’t change that even if I could. It has humbled me and I grew up knowing and being tolerant of others. My best advice for my fellow Moebians, follow your heart and don’t be afraid to go the distance, talk to that person you think doesn’t like you, apply for that job that your scared of bc you look different. Be the amazing people that we are and NEVER LET ANYONE DULL YOUR SPARKLE! Much love and blessings to my amazing moebius community. [❤️] ​

Moebius Syndrome 

January 16 2019