Moebius Syndrome Awareness Day 2019 

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Moebius Syndrome Awareness Day

About US

The MFOMS is an organization comprised of individuals who are committed to our mission of creating a better tomorrow for ourselves and our children with Moebius syndrome. We do this by educating the public and spreading global awareness.

We are not a non profit. All of our programs are paid for by individuals with huge hearts who are associated with the Many Faces of Moebius Syndrome. We do not, and can not except donations. When we do fundraisers they are done through a third party such as crowdrise. We never see any of the money.

The MFOMS is an international Moebius syndrome organization. We currently have twenty seven global Moebius syndrome ambasadorsaround the world who help us spread awareness. We founded Moebius Syndrome Awareness Day and we were the chief architects in creating online global moebius syndrome community. Our efforts to spread awareness have been mentioned several times in the global media. Tim Smith was given an award certificate in 2014 by the MSF for his efforts in promoting Moebius Syndrome Awareness Day.

We currently own twelve website domains and run three separate websites to promote Moebius syndrome awareness around the globe. We will be launching a new teen Moebius website in 2016.

We created this website for all of the Moebius Syndrome Organizations around the world to use.

This is the official Moebius Syndrome Awareness Day website of the global Moebius Syndrome Community. Individually we are a drop of water. Together we are an ocean.

If you have any questions or comments please email them to us.

If you want to be part of the future and make a difference join our Moebius Syndrome Ambassador team! Email us at

Booster Campaign