Moebius Syndrome Awareness Day 2019 

Moebius Syndrome Awareness Day

Books & Brochures

Facing it Together ​- A workbook and DVD to provide support, insight and effective strategies to deal with issues that parents face during the first few years of a child’s life. Facing it Together is free for Canadian parents of children under the age of 5 with a facial difference, or available for purchase. For information on the cost and to order a copy, contact AboutFace in Canada at www.aboutface.ca.

Moebius Syndrome - The 18-page booklet on Moebius syndrome was published by AboutFace and the Cleft Palate Foundation. For information on the cost and to order a copy, contact AboutFace in Canada at www.aboutface.ca.


A Guide to understanding Moebius syndrome​ - This booklet is a publication of the Children’s Craniofacial Association. The PDF may be downloaded from the CCA web site. The booklet is also available in Spanish.


Moebius Syndrome Foundation Brochure​ - To request a copy, email info@moebiussyndrome.com. Click here to download a copy.

Smile For Me is a book written by Linda Lawrance from Australia to teach kids about Moebius Syndrome. This is an awesome book that we believe is a must have for any adult who wants to help their children understand what Moebius Syndrome is. Click here to view or download the book in pdf format. 


This is a story about a mother with a son born with Moebius Syndrome among other medical issues. Throughout this book, she takes you through the first 9 years of his life. Experiencing many emotions as you read, each page will leave you wanting more. So take a journey through the eyes of this mother as she tells you about the boy who smiles with his heart. Click here for more details.